Links
Tube Feeding Information and Websites
Agency for Clinical Innovation - A Clinician’s Guide: Caring for people with gastrostomy tubes and devices
AuSPEN Blended tube feeding in enteral feeding: Consensus Statement
Australasian Society of Parenteral and Enteral Nutrition (AuSPEN) - Resources
Child Feeding - An Australian site for parents and carers of children with complex feeding difficulties.
Don't Rush to Crush - The Society of Hospital Pharmacists of Australia’s 'Don't Rush to Crush' is the essential guide to safely administering oral medicines to people with enteral feeding tubes or swallowing difficulties.EleCare Family - Full of facts, advice, tips and resources to help you care for your child.
Health Navigator - About tube feeding.Health Navigator - Tube feeding using a nasogastric or nasojejunal tube.Kids Health NZ - Tube Feeding.My Tube Feeding - Nestle Health Science website for tube feeding information and resources.
My Tube Feeding Kid - Nestle Health Science website for education and resources for your child's journey.
Nestlé Health Connect - Enteral Feeding.
Nutricia – Free Feeding Tube Patient Resources for Healthcare Professionals.
Paediatric Feeding by Dr. Tessa Taylor & Dr. Sarah Ann Taylor.
Pump e-Newsletter - Subscribe to receive PUMP fortnightly newsletter straight to your inbox from Tube Dietitian.
Starship - Clinical Network for Paediatric Tube Feeding.
Sydney Children’s Hospital Factsheets on Tube Feeding.
The Royal Children's Hospital Melbourne - Enteral feeding and medication administration.
Tube Fed by Avanos - A comprehensive guide to tube feeding, all in one place. Brought to you by the makers of MIC-KEY* G-Tube. Sign up to receive quarterly emails that cover topics like tube maintenance, industry news, tips & tricks, creative ideas and real-life stories here.
Tube Feeding (UK) – A Nutricia site for answers and support to help you understand, adapt and live confidently with tube feeding in your life.
Queensland Health - Tube Feeding at Home.
Tube Feeding Supplies and Accessories
Able Collective - A brand dedicated to celebrating all abilities and promoting disability inclusion.
Abbott Nutrition – Product information and resources for patient care.
AMSL Medical – Online store offering a range of enteral feeding devices and innovative medical solutions including Medicina, danumed and FreeArm.
AMSL Medical - Supplies a comprehensive range of Medicina products including:
- danuButton® Compact Set / Premium Set- danumed® Extension Set for Gastrostomy Button- danumed® GastroTube- danumed® StomaMeter Stoma Measuring Device with retention balloon
- Medicina ENFit Enteral Syringe Feeding System
- Medicina ENFit Gastric Decompression System
- Medicina ENFit Nasogastric Feeding Tubes
- Medicina Gastrostomy Tidy
- Medicina Neonatal Product Range
- Medicina P1000 Enteral Syringe Pump
Akilala – Toys, accessories and feeding tube pads made with love.
Anjelstore - Health and wellness products for children and adults living with complex special needs.
A Simple Patch – Adhesive patches for nasogastric tubes.
Avanos – Digestive Health Solutions.Bizaar Bibs n Bums - Facebook page selling pads/covers etc. for feeding tubes.
Blendtec Australia - A selection of high powered blenders for home and business.
Bright Ears (UK) - Inclusive dolls including feeding tube and stoma dolls.
BrightSky Australia - Australia's leading destination for specialist healthcare products.
Cardinal Health - Supplies enteral feeding equipment.
Chewy Charms - Sensory chew necklaces and accessories.
Choo Mee (US) - Food pouches.
Cortex Health – Medical nutrition and formula.
Device Technologies - Supplies enteral feeding devices.
Dr Brown's - Formula mixing pitcher.
ElementAll Diet - A nutritionally complete formula.
ElementGold - A powdered elemental food.
EMbracing Life Harness - A comfort garment developed to help secure feeding tubes.
Every Human - Life changing adaptive fashion.
EzyAid - An Ezy innovative Aid for tube feeding. Simple and practical, EzyAid alleviates the need for adhesive tape to hold a feeding tube in place.
FreeArm (US) - Tube feeding assistant.
Fresubin - Enteral Nutrition Products (also available through BrightSky Australia).
Functional Formularies (US) - Organic whole foods feeding tube formula.
GranuLotion (US) - Cream for granulation tissue.
Gus Gear (US) – Supplier of Central Line Vest, G-Tube wrap, Ostomy pouch cover and more.
Hammond (UK) – Supplier of Shortie Drysuits for adults and children.
HECSA (Health Equipment and Consumable Supplies Australia) - Enteral feeds consumables and equipment.
HospEquip – Company selling Hospital, Aged Care & Home Care Equipment in Australia including the Jeannie Pill Crusher.
Independence Australia - Supplies healthcare and medical supplies.
Independent Living Specialists - Healthcare equipment solutions.
Joya Medical Supplies - Supplier of a wide range of medical products to professionals and the general public.
Joyfull Mealtimes - Custom-designed range of BPA-free, silicone feeding dishes, cups, utensils, and accessories.
Kate Farms (US) - Organic, plant-based shakes and formulas for adults and kids.
Kids Hope Chest (US) - Fun and safe alternative to traditional retention tape and dressings.
Littlest Warrior (US) - Spreading joy, awareness and inclusion one rad tee at a time.
Liv with Hope - Instagram page with products designed to spread awareness, kindness and hope to people affected by illness.
Mackey Mask - An adhesive free, waterproof, wipeable option that encases the NG tube on the face.Marks & Spencer - Easy dressing adaptive clothing.
Medasyst - Converts solid, hard to swallow medications into a safe liquid.
Miracle Mumma - Premature baby milestone cards and keepsakes and printed tapes for feeding and oxygen tubes.
Nestlé Health Science – Ncare.Nutricia - Specialises in the delivery of advanced nutrition solutions including the range of age-adapted tube feed devices and pumps.
Nutricia at Home - Programme providing home delivery of Nutricia’s complete range of enteral nutrition products.
OLOE® – Ready-to-drink shake.
Ostomy Support Bears WA - Facebook group about making teddies and dolls with stomas.
Raw Blend - Vitamix Dealer.
Ready Set Romper (US) - Bamboo rompers and clothing.
Real Food Blends (US) – Meals for people with feeding tubes.
Real food for Kiwi Tubies – Facebook page with real food blended diet information, tips and advice for Kiwi families using enteral feeds.
RockTape - RockTape RX gentle adhesive tape.
Sew Accessible - Handmade accessible clothing for children.
Sewing for Charity – G-Tube Pads Requests.
Sinchies - Reusable pouches for disabilities and special needs.
Snug as a bub - Facebook page which is home to the 'tube pouch' bib for babies and toddlers with an NG/NJ tube.
Spewy - Bed mats.
Squeasy Gear (US) – Easy feeding on the go.
Squirrel Store (US) – Rehab supplies including feeding supplies.
Stoma Stoma (US) - Perception changing apparel for Tubies, Trachies & anyone who loves one.
StengthHEN - The Fresenius Kabi StrengthHEN service has been developed for health care professionals (HCPs) and their patients to support the management of nutritional needs in the home.
Stronger Trees (US) – Flying Squirrel Feeding Pump Hanger.
Subo Products - Food bottles.
Surgical House - Wholesale and retail supplier of healthcare consumables and equipment distributing Australia wide.
The Priceless - Designs and manufactures medical equipment accessories for tube feeding.
Thermomix Australia - Australian distributor of Thermomix.
The Travelling Tubie Project - Nasogastric and oxygen tapes.
The TubieGuard (US) - Tube feeding case.
Tremendous Tubies - Stylish and fun feeding tube accessories.
Tubesies (US) – Tube feeding friendly bodysuits.
Tubie Friends (US) - Stuffed toys with feeding tubes.Tubie Fun - Button pads, syringe rolls, backpacks, insulated bags, ChooMee feeding products and more.
Tubie Kids (UK) - Fashionable, sensory friendly wardrobe staples for children and pre teens with feeding and medical tubes.Tubie Love (NZ) - Pads/covers, belts etc. for feeding tubes.
Tummy Tunnels (US) - Iron on patches that modify clothing for feeding tube use.
Vitamix - Official distributor of Vitamix household products in Australia and New Zealand.
Whole Enteral - Australian made wholefood tube feeding formula.
Wholesome Blends - Nutritious Enteral Foods.Wonsie - Special needs bodysuits for adults and kids which are perfect for tube feeding.
Associations and Organisations
ASPEN (US) - American Society for Parenteral and Enteral Nutrition.
ausEE Inc. - A charity dedicated to improving lives affected by an eosinophilic disease.
AUSPEN - Australasian Society for Parenteral and Enteral Nutrition
Australian Federation of Disability Organisations - The national voice representing people with disability in Australia.British Dietetic Association (UK)
Carer Gateway - Emotional and practical services and support for carers.
Children’s Nursing Queensland - Supports families all over Australia in their health care journey by providing specialised paediatric nursing care in the home, early childhood services and school environments.
Department of Education, Skills and Employment – The Inclusion Support Program works with child care services to identify and address any barriers to inclusion.
Department of Education, Skills and Employment – The Disability Standards for Education 2005 clarify the obligations of education and training providers, and seek to ensure that students with disability can access and participate in education on the same basis as students without disability.
Dietitians Australia - The leading voice in nutrition and dietetics.
Disability Advocacy Network Australia - The national voice of independent advocacy.
Disability Australia Hub - Your gateway to disability knowledge, advocacy and information resources.
Disability Gateway - Information and services to help people with disability, their family, friends and carers, to find the support they need in Australia.
Disability Pathways - Information and referral service that assists Queenslanders with disability, their family, friends and carers to find advocacy services to suit their needs and location.
Feeding Matters - International organization uniting families, healthcare professionals, and the broader community to improve the system of care for children with pediatric feeding disorder through advocacy, education, support, and research.
Kiind - Supports families raising children living with disability, developmental delay, autism, genetic, rare, undiagnosed and/or chronic conditions.
Kindred - Empowering parents and caregivers to build the knowledge and confidence that will see their families thrive.
My Time - Supporting parents and carers of children with disability.
National Disability Insurance Scheme
Oral Health Home - Helping people with a disability to empower them to look after their teeth and hygiene. they travel to people's homes to provide specialised oral health supports.
Physical Disability Australia - National peak Disability Peoples Organisation (DPO).PINNT - Patients on Intraveneous and Nasogastric Nutrition Therapy (UK)PNDU - Parenteral Nutrition Down Under Inc.RISA Inc. - Financial Assistance with tube feeding – Australia information page.
Siblings Australia Inc. – Support for siblings of children and adults with chronic conditions including disability, chronic illness and mental health issues.
Speech Pathology Australia
Steve Waugh Foundation - Supporting children and young adults in Australia who live with Rare Diseases.
The Nathan Centre - Making a difference to the lives of children and families affected by genetic and rare diseases.The Oley Foundation (US)
TubieTalk (US) - An online community, backed by healthcare professionals, where tube feeding families can connect by sharing first-hand experiences and valuable knowledge to create advocacy.
Support Groups
ausEE - Eosinophilic Gastrointestinal Disorders Australian Support Network - Facebook group for individuals, parents and carers of children living with an eosinophilic gastrointestinal disease (EGID) including eosinophilic oesophagitis (EoE).
ausEE - Eosinophilic Gastrointestinal Disorders for Adults - Facebook group for adults living with an eosinophilic gastrointestinal disease (EGID) including eosinophilic oesophagitis (EoE).
ausEE - Eosinophil-Associated Diseases Australian Support Network - Facebook group for eosinophil-associated diseases e.g. Hypereosinophilic Syndrome (HES), Eosinophilic Granulomatosis with Polyangiitis (EGPA).
Aussie Tubie Mates - Feeding Tube Community - Facebook page.
AU Tubie Support - Facebook support group.Feeding Tube Australia - Facebook support group.
Feeding Tube Australia Adults - Facebook support group.
Macarthur Tube Feeding Families - A local facebook support group for families of tube fed children and loved ones in the Macarthur, NSW area.
Real Food 4 Aussie Tubies – Facebook group for blended tube feeding.
Tube Feeding NZ – Facebook support group.
Tubie Fun Community – Facebook group for Tubie Fun customers, where you can freely share your experiences, exchange valuable tips, and find encouragement in your journey with others who truly understand.
Training
Abbott Nutrition Health Institute - Enteral Tube Feeding 101.
Abbott Nutrition Health Institute - Enteral Tube Feeding: Gastrointestinal Complications.
Abbott Nutrition Health Institute - Enteral Tube Feeding: Surgical and Metabolic Complications.
Allens Training - Enteral Feeding and Management Course.
Ausmed - Caring for Enteral Tubes.
CQUniversity - Enteral Nutrition - Assisting with PEG Feeding - PDC20081
Dietitians Australia - Home Enteral Nutrition for Dietitians Evergreen course.
Education in Nutrition – Blended Tube Feeding.
Education in Nutrition - Blended tube feeding case studies.
Education in Nutrition - Understanding the use of blended diet with enteral feeding tubes.
Get Permission Institute – On-demand and live courses. A responsive, sensitive, and evidence-based approach to supporting children with feeding challenges.
Books and Magazines
Blended: Sharing recipes for love & stories for life by Sarah Thomas, founder of Wholesome Blends.
CALM Limestone Coast - A magazine created by people living with a disability about our lives in the Limestone Coast of SA.
Easy Follow Easy Swallow - by Yvonne McClaren.
Homemade Blended Formula Handbook - by Marsha Dunn Klein and Suzanne Evans Morris.
Infuse – eMagazine by Dietitian Connection.
Source Kids - Australian magazine for parents, carers and professionals of children with special needs.
The Blend - A free magazine resource, a mix of stories, advice and recipes for tubie newbies. Contact us for your free copy of the latest issue!
The Original Natural Tube Feeding Recipe Book
#TubeLife : A Feeding Tube Awareness Themed Composition Notebook by Huck & Berry.
Your Tube: a guide to nutrition through a feeding tube by Lina Breik.
Children's Books
Billy Bear's Button - Free book download from Nutricia.
Bobby B. Button and His Magic Button – by Amy J. Magyar.
Cameron Camel's Pump - Free book download from Nutricia.
Emma's Special Tummy – by Paula C Lancaster.
Feeding Tube Safety for Kids – by Charisse N Montgomery.
I Eat Differently (I Am Different) – by Addison Butler.
Medikidz: Understanding Home Enteral Nutrition - Comic book written by Doctors for kids! Contact us for your free copy while stocks last!
Medikidz: Understanding Oesophageal Atresia - View the free e-book on the Sydney Children's Hospitals Foundation website.My Belly Has Two Buttons - by Meikele Lee.
My Brother has Two Belly Buttons – by Jasmin Martinez.
My Gastrostomy Tube – by Kimberly Gastineau.
My Tubey Books - books for tube-fed kids.
Ruby Rabbit's Nasogastric Tube - Free book download from Nutricia.
The abilities in me: tube feeding - by Gemma Keir.The Adventures of Team Super Tubie - by Kristin Meyer.
Tubie Kids Like Me – by Annette Fournier.
Other Links
Advocating for yourself as a health consumer - Tube Fed article.
All You Can Eat - Dr Sarah Leadley - Help for childhood feeding difficulties.
Awareness Critters - Tubie bolus coloring page.
Be Not Afraid of My Body - A photo series by Kate Disher-Quill in collaboration with the SUCCEED Child Feeding Alliance.
Disability Loop – The ‘go-to’ place for NDIS news, information, resources and events.
Growing Independent Eaters - Provides a tube weaning program.Lively Eaters Feeding Services - A private allied health practice which assists children and their families who are experiencing feeding and eating difficulties from birth through the early school and teenage years.
Natural Tube Feeding – Information on blended meals for tube feeding.NoTube - Offers a weaning program for tube-dependent children that no longer medically require tube feeding.
Paediatric Feeding International - Dr Tessa Taylor - Providing international consultancy, assessment, and treatment services that work for Paediatric Feeding Disorders.
The No Feeding Tubes Show – Apple Podcast by Yvonne McClaren.
Tube Dietitian - Your partners in tube feeding nutrition care. Their dietitians are university qualified Accredited Practising Dietitians and Accredited Nutritionists.
Tubie Talks - a podcast series from Melanie Dimmitt celebrating the lives of people and families who tube-feed. Check it out on various podcast apps including Apple Podcasts and Spotify.
Yvonne McClaren - PEG Fed Transition Success Coaching.